National Organizations
Center for Disease Control & Prevention: FASD www.cdc.gov/ncbddd/fasd/ Basics, Research, Education, Training, free materials
FASD United National Organization of FASD (formally known as NOFAS) fasdunited.org/
Proof Alliance www.proofalliance.org/ Preventing fetal alcohol spectrum disorders and supporting all impacted
The ARC www.thearc.org/ Support for persons with intellectual and developmental disabilities Scroll and search for resources on FASD
American Academy of Pediatrics FASD Toolkit on Diagnosis and Prevention AAP toolkit was developed to raise awareness, promote surveillance and screening, and ensure that all affected children receive appropriate and timely interventions.
www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/fetal-alcohol-spectrum-disorders-toolkit/Pages/default.aspx
FASCETS www.fascets.org/ FASD Consultation, Education and Training works to increase understanding of FASD as a brain-based disability. Links to books and workshops by Diane Malbin.
Woman and Alcohol www.womenandalcohol.org/
FAS Diagnostic and Prevention Network depts.washington.edu/fasdpn/ Resources for 4-digit code and guides for diagnosis.
Families Affected by FASD fafasd.net/ Good resource for parents and posters for FASD
CIFASD https://cifasd.org/ Collaborative initiative on FASD research
State & Regional Organizations (just a few)
South Carolina DAODAS Don't Risk It SC dontriskitsc.com/
Arctic FASD Regional Training, Practice & Implementation Center www.uaa.alaska.edu/arcticfasdrtc/
Missouri Affiliate of NOFAS nofas.missouri.edu/
FASD Education University of Wisconsin-Madison fasdeducation.org/
Kentucky FASD Center KY prevention site for FASD, many free downloads, posters, guidebooks WAS a great site now has disappeared!
Southern California FASD Information & Support Network sites.google.com/site/socalfasdnetwork/ Good informational resource
Florida Fights FASD www.fightfasd.org/ Provides information for Educators, Families, Women and Professionals, Features videos
FASD in NC www.fasdinnc.org/ promoting alcohol free pregnancies, collaborative information and workshops in NC
NoFAS of Georgia www.nofasgeorgia.org/ Resources in Georgia
Canadian and International Organizations
FASlink www.faslink.org/ Fetal alcohol disorders and society, research, information, support, and communications
Provincial Outreach Program www.fasdoutreach.ca/ e-Learning videos & Teaching Resources
Saskatchewan Prevention Institute www.skprevention.ca/fetal-alcohol-spectrum-disorder/ Variety of downloads for training materials and videos on FASD
European FASD Alliance www.eufasd.org/
New Zealand FAS Network www.fan.org.nz/ See what another country is doing- FAS is not just a problem in the US. Good media campaign. Has links to many downloads including Hey Teacher and an online activity about making responsible decisions about drinking during pregnancy.
Knowledge Exchange Network - Canadian Association Pediatrics Search for FASD for webinars and screening tools www.caphc.org/knowledge-exchange-network/
FASD Trust www.fasdtrust.co.uk/ A site dedicated to raising the awareness of FASD
Collaborative Initiative on Fetal Alcohol www.cifasd.org/ Collective of medical and university research sites developed to inform and develop effective interventions and treatment approaches
South Carolina Organizations to Support Parents and Persons with Disabilities
DAODAS www.daodas.state.sc.us South Carolina Department of Alcohol and Drug Abuse
SC Federation of Families fedfamsc.org/ Support for Children’s Mental Health in SC
Protection and Advocacy pandasc.org/ Support for Persons with Disabilities
The ARC of the Midlands arcmidlands.org/ Support in the Midlands for persons with intellectual and developmental disabilities.
Greenwood Genetic Center www.ggc.org/ Pediatric referrals based on concerns for intellectual disability, autism, growth problems, and other abnormal development testing
Online Support Groups
SCFASD Collaborative - membership closed ask to be a member, local SC Facebook group
FAS Support - Parents Supporting Parents - membership closed, ask to be a member, great national support group in Facebook
Fetal Alcohol Syndrome Forever w/ Jeff Noble - Facebook good to follow with interesting tips on parenting
FASD (a) "FLYING WITH BROKEN WINGS" - closed group in Facebook
Parenting FASD Teens and Adults - closed group in Facebook
Fetal Alcohol Spectrum Disorders - Open Group in LinkedIn
APPS
CDC Fetal Alcohol Spectrum Disorders Application search on iTunes, free app available for iPhone
Links to Informational Sites Related to Alcohol
College Binge Drinking /www.collegebingedrinking.net/
National Institute on Alcohol Abuse and Alcoholism www.niaaa.nih.gov/
Binge Drinking & Women www.cdc.gov/VitalSigns/BingeDrinkingFemale/index.html
SAMHSA Substance Abuse and Mental Health www.samhsa.gov/
Alcohol Research UK Information and studies related to reducing harm from alcohol alcoholresearchuk.org/